Why can't people with Kleine Levin syndrome cause their brain to adjust to a normal schedule? There is a method called the Uberman sleep schedule in which you deprive yourself of sleep in order to achieve REM faster and have more restful sleep. Why can't people with Kleine Levnin syndrome do that? I think that people who have Kleine Levin syndrome need to just man up and get out of bed.
Why would you care? Why would you ask? Do you know a person with KLS? And what do you know about KLS or sleeping disorders?
KLS is not a circadian rhythm sleep disorder where people have a hard time waking when they should wake or sleeping when they should. That has to do with melatonin, sun light, and a history of sleeping too late and/or staying up too late. That is more an an annoyance rather than a dibilitating disorder.
People with KLS don't just need to hit REM faster, that is all irrelevant. Not to mention that just getting REM sleep is not the best thing, delta wave (N3) sleep in particular is important. Not to mention that a person with KLS can sleep for a month with only an hour or two awake so sleeping 20-22hrs daily will still be better than The Uberman Sleep Schedule, which is NOT designed to reset your circadian rhythms. There is a completely different type of sleep deprivation for people who are waking/sleeping at the wrong time.
And a person with KLS who is symptomatic could never stay awake that long, they would just pass out and not wake. If you put a gun to the hekleine-levin syndromead of a person with KLS and said "say awake or you die" then they would die because it is a serious, debilitating, extremely rare problem. Don't you think sleep specialists might have mentioned that Uberman sleep schedule was the cure if it actually was? Do you really think the people with KLS just want to sleep for months at a time as their life goes by?
You might think people with KLS should just "man up" the problem is they can't or they do get out of bed and perhaps fall back asleep in the bathroom or the hall.
Why are you bashing these people and acting like you have all the answers? What makes you think they can get out of bed and just have a normal life. Even with 100-120 mg of amphetamines they still can't be awake for very long.
I would love to know where you got these theories.
Do you think narcolepsy is a joke too? Just a bunch of lazy people?
I have KLS. It really sucks. Believe me.
Hi,
I have KLS too and it is very hard. I have created a website for Kleine Levin Syndrome. I created this site to increase awareness and elevate compassion for this debilitating illness by sharing my story. Please take a look at it: www.klslife.com
I'm fairly certain that my husband has KLS and if so, then I can tell you that it's so far beyond sleeping or staying awake for a certain amount of time. Even if he were physically able to do it (which is not pokleine-levin syndromessible, no matter which way you look at it), his brain shuts down to the point that he wouldn't understand the idea of even trying to. Even the simplest words or instructions are unfathomable, like a computer program trying to read a document in the wrong format.
I can say from my experience that it is frustrating to be on the outside of it. Though I've always been supportive and caring, I always struggled with the very mentality that he should just get over it sometimes. Until I had something similar happen to me almost a year ago. I don't think I have KLS, but whatever happened, it sounds exactly like it. And the only thing I felt or could even think about was fear. I remember looking at my phone to call him and just not knowing how to do it. Forget getting out of bed! I was terrified and completely disconnected. Since then, I've been totally understanding when he tells me he's sick.
Why can't people who smoke simply quit smoking? You make it seem like the Uberman sleep schedule is easy. It's a very hard process to get into. Likewise, a good deal of medical professionals don't even recognize it yet, so most go without knowing about it.
Yes if only everything was so easy. Don't be ignorant. It's easy to run at the mouth about something when you haven't dealt with it.
ignorant. reported.
I think that you don't know what you're talking about.
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